The PKU Northwest Alliance is a non-profit 501c(3) organization formed in 2003 by a group of motivated parents who wanted to connect with other families living with Phenylketonuria (PKU). Our mission is to create a supportive community for PKU families, promote healthy living choices and offer resources to help manage the PKU diet.
A major component of our work is organizing an annual family-oriented camp that offers the PKU community an opportunity to come together for a relaxing weekend of fun in the high desert of Oregon. We manage a Facebook group for those families with PKU living in Oregon, which is a great place to ask questions, share stories and connect with one another. We organize smaller events throughout the state as resources allow.
Over a decade later, the humble beginnings of this annual family-oriented camp has blossomed into a 200+ person event. Our camp includes cooking workshops, support and networking opportunities, and speakers who discuss the latest medical breakthroughs related to this rare metabolic disorder. The camp continues to grow year after year, offering something for every age group.
This is an all-inclusive vacation where we cook all of the meals for you - both PKU and non-PKU meals - in part from generous donations from PKU food providers. Families look forward to discovering new low-protein recipes along with the tried-and-true favorites.
GET INVOLVED
Board Members
There are three board member positions that serve a two-year term: President, Treasurer and Secretary. Board members attend a monthly conference call, beginning in December.
Chair Committees
The individuals filling the chair committee roles would be expected to attend a monthly conference call beginning in January. Some work will be expected outside of the monthly calls, depending upon the role; on average, 2 hours a month.
General Volunteers
We are always looking for volunteers to help make camp a success! Volunteer opportunities include a variety of options like fundraising, organizing a kid's activity, helping with meal prep and coordinating logistics prior to camp. Reach out by emailing us as pkunwa@gmail.com to find out more details.
